Not long ago, a boy in Hunan, China caused a stir in public opinion in this country when his face was split in half, looking like he was wearing a mask. Many people called that poor child “two-faced boy”, or “mask boy”.
On March 4, 2009, through much pain, Ms. Yi Xi Lien, in Tuong Huong commune, Tuong Dam city, Hunan province, China gave birth to her first son Khang Khang (character name has been given). change) at a hospital in his hometown.
However, unlike other mothers, Ms. Hi Lien waited forever and still did not see anyone carrying her child to her side. She used what little strength she had left to urge her husband to bring the child over so he could hold the child in his arms. At this time, she saw her family members and other people in the hospital room looking awkward, some of them even mumbling: “Don’t be sad, don’t be too heartbroken!”
When she saw her son, Hi Lien almost froze in place. Why does my little Khang Khang have two faces like that?
The young mother was once again shocked when doctors announced that her son had Moebius syndrome, a rare neurological disorder that appeared at birth. People with this symptom cannot move their faces, such as frowning, smiling or blinking, and cannot even move their eyes from side to side…
In addition, patients also have bone problems, causing deformed limbs, respiratory disorders… Due to many difficulties in communicating through facial expressions and being unable to smile, about 30% of children Children with Moebius syndrome both have autism. This is a rare neurological disease, with a frequency of 1/500,000 people.
Ms. Dich Hi Lien said that before she became pregnant, both she and her husband worked in an electronics factory in Huizhou city, Guangdong province. When she discovered she was 1 month pregnant, she immediately quit her job and returned home to take care of the pregnancy.
During her pregnancy, Ms. Hi Lien had a total of 4 ultrasounds at 2 different hospitals, including 1 4D color ultrasound. Every time she had an ultrasound, the doctors concluded that the fetus in her womb was developing completely normally, with no differences.
Ms. Luu Phuong Lien – Ms. Dich Hi Lien’s mother – recalled that when Khang Khang was born, the umbilical cord was wrapped around his face. She suspects this may be the cause of her grandson’s deformities. However, until now people have not been able to verify the specific cause of Moebius syndrome.
According to some experts, this syndrome can be caused by the following reasons: genetic disease, or the child was poisoned around the time of conception; During pregnancy, the mother is predicted to have a miscarriage, or use certain drugs that harm the formation and development of the fetus…
In addition, because Ms. Dich Hi Lien used to work in an electronics factory for a long time, the doctor also raised the suspicion that she had been exposed to radiation before becoming pregnant. However, all are just predictions and have not been verified. It is known that in the last 3 generations of Dich Hi Lien and her husband’s family, no one has had a similar disease like this.
The young mother choked up and shared that every time she saw her child, she felt sad. When the child cried, she also cried. She lamented why fate treated her son so unfairly.
Every time Khang Khang goes out, others point at him and make unkind comments. Many people even advised Ms. Dich Hi Lien to give up her child, or put him in an orphanage. But how can a mother like you throw away your intestines like that?
Despite many obstacles, Khang Khang’s family is still determined to raise the boy well. They also always hold out hope that in the future, Khang Khang’s disease will be cured, so he can go to school and have fun like many of his peers.
When Khang Khang was less than 20 days old, Ms. Dich Hi Lien took her baby to a big hospital for a medical examination. Here, doctors said the most appropriate time to perform surgery on Khang Khang is when he is 6 months old, with a minimum cost of up to 30-40 thousand yuan (equivalent to 98-130 million VND). . For Khang Khang’s family, this is a huge amount of money, they need time to make ends meet.
And then, the “two-faced boy” missed the best opportunity to have surgery. It was not until Khang Khang was over 1 year old that, thanks to the help of benefactors, he was taken to the Department of Burns and Orthodontics for Dental – Jaw – Facial Wounds of Hospital 163, in Ho Province. Male to prepare for surgery.
Doctors at Hospital 163 will conduct at least 2 surgeries for Khang Khang. Although they encountered many difficulties and dangers during the surgery, they hoped to be able to connect the patient’s “two faces” and help him integrate into life, as well as with everyone. around me. The main doctor in charge of the complex surgery also promised to devote all his efforts to restoring facial function for little Khang Khang.
After a period of causing a stir in public opinion and causing the press to waste a lot of ink and paper, people could no longer find the whereabouts of that “two-faced boy”. Just know that the doctors have announced that Khang Khang’s surgeries were all successful, but the boy must wait at least 10 years to know that his joints and facial muscles can develop normally. again or not. Until now, even though many years have passed, many people still can’t help but wonder what this boy’s new life will be like…
